The Stanford Neuromuscular Disorders Program News & Events
Events
2018
January
1/20, ALS Association Ask the Experts, Stanford Neuromuscular Program co-sponsoring, John W. Day, MD, PhD and other Stanford ALS experts presenting. More information
February
2/11, 9:00 AM – 3:30 PM, Stanford 5th Annual Myotonic Dystrophy Family Meeting, Mitchell Park Community Center, Palo Alto, CA, John W. Day, MD, PhD and Stanford DM experts presenting
2/13, 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group, Stanford Neuroscience Health Center, Wellness Room, 1st Floor, Palo Alto, CA
2/25, 1:00-3:00PM, FSHD Support Group, Hoover Building, 211 Quarry Road, Palo Alto, CA
May
5/13, 1:00-3:00 PM, FSHD Support Group, Hoover Building, 211 Quarry Road, Palo Alto, CA
5/15, 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group, Stanford Neuroscience Health Center, Wellness Room, 1st Floor, Palo Alto, CA
August
8/14, 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group, Stanford Neuroscience Health Center, Wellness Room, 1st Floor, Palo Alto, CA
September
09/16, 1:00-3:00 PM, FSHD Support Group, Hoover Building, 211 Quarry Road, Palo Alto, CA
09/29, Stanford Neuromuscular Program’s Neurology Symposium, Stanford Alumni Center, Stanford, CA
October
T.B.D. Stanford's Breakthroughs in Neurology, Dr. John Day speaking
November
11/03 Stanford and Parent Project MD, End Duchenne Tour, Family Meeting, Mitchell Park Community Center, Palo Alto, CA
11/06, 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group, Stanford Neuroscience Health Center, Wellness Room, 1st Floor, Palo Alto, CA
December
12/2, 1:00-3:00 PM, FSHD Support Group, Hoover Building, 211 Quarry Road, Palo Alto, CA
2019
2/23, Stanford Spinal Muscular Atrophy Conference with CureSMA, Stanford Alumni Center, CA
Neuromuscular Videos
John Day, Professor of Neurology, discusses amotrophic lateral sclerosis (ALS) in this news segment.
Neuromuscular News
Apr April 20 Fri 2018
Dec December 11 Mon 2017
Oct October 01 Sun 2017
Choosing with Care, Quest
*pages 20-26
Sep September 28 Thu 2017
Aug August 24 Thu 2017
New Stanford drug saves child with deadly genetic disease, The Mercury News
Mar March 20 Mon 2017
Dec December 06 Tue 2016
Mar March 06 Fri 2015
PPMD Names Stanford Comprehensive Neuromuscular Clinic at Lucile Packard Children's Hospital a Certified Duchenne Care Center, Parent Project Muscular Dystrophy
Jan January 07 Wed 2015
Stanford Biobank Seeks Tissue Samples, Quest mda.org
Aug August 21 Thu 2014
Ice Bucket Challenge Changes Way Charities Operate, NBC Bay Area
Jun June 11 Wed 2014
Neuromuscular Support Groups
CMT Support Group Dates for 2017
When: 11 am – 1:00 pm
Where: Stanford Neuroscience Building, Wellness Room, 1st Floor, 213 Quarry, Palo Alto
January 14: Guest Speaker: Martin Simenc, founder of Home Safety Products, will speak on making home modifications. For more info about Home Safety Products, visit http:// www.homesafety.net/
March 11: Speaker: Arnie Davis of Davis Foot Comfort Center in San Francisco will present on finding the right shoes, and his work with custom adjustments for shoes to address our funky feet.
May 13: Christy Vitiello, an acupuncturist, will speak on how acupuncture can improve some CMT symptoms. Her practice is in San Francisco. Christy will share with us the benefits of acupuncture and some recommendations for finding the right acupuncturist for you. http:// www.cv-acupuncture.com/
July 8: t.b.d.
September 3: Annual Walk to Run 4 CMT.
November 11: t.b.d.
Myasthenia Gravis Support Group Dates for 2017
When: 6pm-7:30 pm
Where: Stanford Neuroscience Building, Wellness Room, 1st Floor, 213 Quarry, Palo Alto
February, 21: Guest Speaker: Sarah Strandberg, Speech & Language Pathologist, Stanford
April 11: no speakers
July 11: speaker tbd
October 10: speaker tbd
ALS Ice Bucket Challenge
Neuromuscular Multidisciplinary Clinic responds to Ice Bucket Challenge
California Pacific Medical Center’s Forbes Norris MDA ALS Research Center challenged Stanford’s Neuromuscular Multidisciplinary Clinic to the Ice Bucket Challenge. Yesterday more than 30 people from the Neurosciences Department, the Rehabilitation Department, the construction team for the new Hoover Two building project, the Integrative Medicine team and the business development team joined the Neuromuscular Team to respond to the challenge. Neuromuscular Clinic Director, John W. Day, MD, PhD, said a few words about the need for ALS research funding and challenged several other teams to do the Ice Bucket Challenge. Stanford’s Neuromuscular Multidisciplinary clinic cares for ALS patients and their families and is involved in ALS research. For more information about ALS and the Ice Bucket Challenge visit icebucketchallenge.org.
Stanford team at the Myotonic Dystrophy Foundation conference
Outreach Coordinator, Jennifer Fisher, crossing the finish line at the ALS Walk
Dr. Jacinda Sampson and Janis Kitsua-Lowe (Peds. OT) at the MDA Walk in San Jose
SHC Team Participates in MDA Muscle Walk 2013
Stanford Hospital & Clinics was well represented at the MDA Muscle Walk. SHC participants (pictured above, L to R) included Margaret Dougherty, OTR, Sarada Sakamuri, MD, Michelene Oberst, MSW, Julie Mello, PT, Jennifer Fisher, Community Liaison, John Day, MD, Director of Neuromuscular Program. The MDA Muscle Walk® is a series of local walk events across the country held to pay tribute to and raise funds for children and adults served by the Muscular Dystrophy Association.
Questions about events?
Jennifer Fisher, Neuromuscular Community Outreach Liaison
T: (650) 497-5934
jnfisher@stanford.edu