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The Affects of G.I. issues, Cardiac & Sleep on Myotonic Dystrophy Presentations - Duration: 1 hour, 14 minutes.
First Annual Myotonic Dystrophy Patient Education Meeting at Stanford School of Medicine. G. I. presentation by Linda Nguyen, MD, Director of Stanford's Neurogatroenterology & Motility Center, card...This item has been hidden -
John W. Day, MD, PhD, Intro 2014 Stanford Myotonic Dystrophy Patient Information Meeting - Duration: 26 minutes.
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Dr. Joshua Burns - Stanford CMT Conference 2015 - Duration: 45 minutes.
Joshua Burns, MD, PhD: Joshua Burns combines clinical and research training in Podiatry and Physiotherapy. He has re-ceived Postdoctoral Fellowships at The Children’s Hospital at Westmead and The U...This item has been hidden -
Carly Siskind - Stanford CMT Conference 2015 - Duration: 17 minutes.
Carly Siskind, MS, LCGC, Senior Genetic Counselor, Assistant Clinical Professor-Affiliated, Lucile Packard Children’s Hospital at Stanford: Prior to her arrival at Stanford, Ms. Siskind worked in n...This item has been hidden -
Dr. Frank Longo - Stanford CMT Conference 2015 - Duration: 17 minutes.
Frank M. Longo, MD, PhD, Professor and Chairman, Neurology and Neurological Sciences, Stanford Medicine:
Dr. Longo is Professor and Chairman of the Department of Neurology and Neurological Sciences...This item has been hidden -
Elizabeth Ouellette - Stanford CMT Conference 2015 - Duration: 17 minutes.
Elizabeth Oullette, Vice-Chair, Charcot-Marie-Tooth Association:
Elizabeth Ouellette is the Vice-Chair of the Charcot-Marie-Tooth’s Association’s (CMTA) Board of Directors.
Her volunteer role withi...This item has been hidden -
Bethany Meloche - Stanford CMT Conference 2015 - Duration: 24 minutes.
Bethany Meloche, Director of Social Media, Charcot-MarieTooth Association Director:
CMTA Director of Social Media and motivational speaker, Bethany Meloche, is an honest and engaging storyteller. B...This item has been hidden -
Dr. John Day - Myotonic Dystrophy from Head to Toe - Duration: 19 minutes.
Stanford's 3rd Annual Myotonic Dystrophy Information Meeting
"Myotonic Dystrophy from Head to Toe: The Systems that are affected. Research update: where are we going?"
John W. Day, MD, PhD, Profe...This item has been hidden -
Penni Warford - Advocacy (Part 1) - Duration: 22 minutes.
Stanford's 3rd Annual Myotonic Dystrophy Information Meeting
"How to Advocate for Yourself with Your Healthcare Team" Part 1
Penni Warford, Parent, Advocate:
Mrs. Warford is a parent, grandparen...This item has been hidden -
Dr. Jacinda Sampson - Advocacy (Part 2) - Duration: 16 minutes.
Stanford's 3rd Annual Myotonic Dystrophy Information Meeting
"How to Advocate for Yourself with Your Healthcare Team" Part 2
Jacinda Sampson, MD, PhD, Neurogeneticist, Neurologist, Stanford Medic...This item has been hidden -
Laurence Mignon - Ionis Research Update - Duration: 12 minutes.
Stanford's 3rd Annual Myotonic Dystrophy Information Meeting
"Research Update from Ionis (formerly Isis)"
Laurence Mignon, PhD, Director of Clinical Ionis Pharmaceuticals, Inc.:
Dr. Mignon is re...This item has been hidden -
Rob Besecker - ForEver Strong - Duration: 26 minutes.
Stanford's 3rd Annual Myotonic Dystrophy Information Meeting
Rob Besecker, MBA:
Rob has been living with heart and muscle disease for the past decade. He is the author of the forthcoming book, "F...This item has been hidden -
Carleigh Kude - Prepare to Go to College! (Part 2) - Duration: 7 minutes, 55 seconds.
Stanford's Duchenne Meeting 2016
Carleigh A. Kude, MPA, Disability Advisor, Stanford's Office of Accessible Education
Carleigh is a disability adviser at Stanford’s Office of Accessible Education...This item has been hidden -
Dr. Beth Kaufman - Matters of the Heart: Early and Late Stage Cardiac Treatment of DMD (Part 1) - Duration: 33 minutes.
Stanford's Duchenne Meeting 2016
Beth D. Kaufman, MD, Cardiologist, Lucile Packard Children's Hospital at Stanford
Dr. Kaufman is a Clinical Associate Professor of Pediatrics, as well as a member...This item has been hidden -
Dr. Beth Kaufman - Matters of the Heart: Early and Late Stage Cardiac Treatment of DMD (Part 2) - Duration: 11 minutes.
Stanford's Duchenne Meeting 2016
Beth D. Kaufman, MD, Cardiologist, Lucile Packard Children's Hospital at Stanford
Dr. Kaufman is a Clinical Associate Professor of Pediatrics, as well as a member...This item has been hidden -
Siddarth Karnala - Living Life to the Fullest - Duration: 6 minutes, 32 seconds.
Stanford's Duchenne Meeting 2016
Siddarth is a college student living with DMD.This item has been hidden -
Carleigh Kude - Prepare to Go to College! (Part 1) - Duration: 33 minutes.
Stanford's Duchenne Meeting 2016
Carleigh A. Kude, MPA, Disability Advisor, Stanford's Office of Accessible Education
Carleigh is a disability adviser at Stanford’s Office of Accessible Education...This item has been hidden -
Tina Duong - Keep Moving... Therapy, Robotics, Equipment & Assistive Tech (Part 1) - Duration: 33 minutes.
Stanford's Duchenne Meeting 2016
Tina Duong, MPT, Research Physical Therapist, Stanford Neuromuscular Program
Ms. Duong is a research physical therapist at Stanford with over 10 years of clinical...This item has been hidden -
Tina Duong - Keep Moving... Therapy, Robotics, Equipment & Assistive Tech (Part 2) - Duration: 28 minutes.
Stanford's Duchenne Meeting 2016
Tina Duong, MPT, Research Physical Therapist, Stanford Neuromuscular Program
Ms. Duong is a research physical therapist at Stanford with over 10 years of clinical...This item has been hidden -
Dr. Josh Sternbach - Masks & Good Sleep Hygiene - Duration: 29 minutes.
Stanford's Duchenne Meeting 2016
Josh Sternbach, MD, San Francisco Critical Care Medical Group, California Pacific Medical Center
Dr. Sternbach did his residency and chief residency in internal m...This item has been hidden -
Dr. Jacinda Sampson - DMD Research: What's Next? - Duration: 34 minutes.
Stanford's Duchenne Meeting 2016
Jacinda Sampson, MD, PhD, Neuromuscular Neurogeneticist, Stanford Medicine
Dr. Sampson is a neurogeneticist and she enjoys caring for adults and children in the m...This item has been hidden -
Dr. John Day - CMT 2016 Welcome - Duration: 6 minutes, 14 seconds.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
John W. Day, MD, PhD, Director, Neuromuscular Program, Stanford Medicine
Dr. Day has over 25 years of experience in diagnosing, treating a...This item has been hidden -
David Misener - Brace Yourself (Part 1) - Duration: 33 minutes.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
David B. Misener, BSc (HK), CPO, MBA, Clinical Prosthetics & Orthotics LLC
David Misener is an American Board Certified Prosthetist and Or...This item has been hidden -
David Misener - Brace Yourself (Part 2) - Duration: 9 minutes, 5 seconds.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
David B. Misener, BSc (HK), CPO, MBA, Clinical Prosthetics & Orthotics LLC
David Misener is an American Board Certified Prosthetist and Or...This item has been hidden -
Arnie Davis - Expanding the Possibilities of Footwear for People with CMT (Part 1) - Duration: 33 minutes.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
Arnie Davis, C. Ped, Davis Foot Comfort Center
Arnie Davis is a certified pedorthist, master shoemaker, author, and the owner of Davis Foo...This item has been hidden -
Arnie Davis - Expanding the Possibilities of Footwear for People with CMT (Part 2) - Duration: 2 minutes, 14 seconds.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
Arnie Davis, C. Ped, Davis Foot Comfort Center
Arnie Davis is a certified pedorthist, master shoemaker, author, and the owner of Davis Foo...This item has been hidden -
Elizabeth Misener - The Science of Happiness - Duration: 32 minutes.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
Elizabeth K. Misener, PhD, LMSW, Vitality at Work
Elizabeth Misener is an Assistant Professor in the Masters of Social Work Program at the...This item has been hidden -
Julie Muccini - Aids for Daily Living - Duration: 23 minutes.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
Julie Muccini, MS, OTR/L, Occupational Therapist, Stanford Hospital
Since 2009, Ms. Muccini has been an Inpatient Rehabilitation Neuroclin...This item has been hidden -
Gilles Bouchard - STAR Research Update - Duration: 24 minutes.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
Gilles Bouchard, Charman of the Board, CMT Association
Mr. Bouchard's son, Yohan, was diagnosed with CMT1A in 2001. He has been a voluntee...This item has been hidden -
Dr. John Day - CMT General Update (Part 1) - Duration: 33 minutes.
Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016
John W. Day, MD, PhD, Director, Neuromuscular Program, Stanford Medicine
Dr. Day has over 25 years of experience in diagnosing, treating a...This item has been hidden