One in five American children has a special health care need. What is it like to care for them each and every day and night? In December 2016, we released the “Super Parents” project, a photographic journey into the lives of 10 families in California (pictured here, holding their children's "care maps"). We invite you to share your story with us too, and help build the collective voice of millions of Super Parents across the country. We have also developed a related traveling exhibit.
“My boys have already made an impact.”
“As a mom, you’re always thinking, what if something happens to me?”
“All of the pieces a child needs should operate together.”
“I wish all of his doctors were in one building.”
“It's a puzzle. It's a juggle. And no one's going to figure it out for you.”
“It’s a ticking time bomb. We have to live our daily lives knowing that things could go haywire at any time.”
“I’d rather be her mom. I don’t want to be her doctor.”
“At the end of the day, we are a normal family.”
“Get up, and do it all over again. Every. Single. Day.”
