Search NORD’s Database for reports on more than 1,200 diseases. Search database >
Resources to help you start or grow your patient organization. View resources >
Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >
NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >
NORD raises awareness of rare diseases among physicians, clinicians and other medical professionals. View guides >
The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >
NORD Issues Statement on Increasing Use of CoPay Accumulator Programs in Health Plans
“In order to raise awareness of these programs and the harm they will cause to many in the rare disease community, NORD has created a short explanation of the issue for patients and their families.”
A Celebration of NORD’s 35th Anniversary
“The evening showcased the remarkable stories of those creating a brighter future for every person affected by a rare disease. Their stories and achievements are truly inspirational.”
NORD Launches RareInsights, New Initiative to Support Data-Driven Advocacy, and Presents 5 Myths About Orphan Drugs and the Orphan Drug Act
“NORD today launched RareInsights™, its new initiative to expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families, and kicked off the program with the infographic 5 Myths About Orphan Drugs and the Orphan Drug Act ”
New Research Funding Opportunities Available from NORD
“All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018”
